Other Resources

Cooley's Anemia Foundation (CAF)

The Cooley’s Anemia Foundation (CAF) is dedicated to serving people afflicted with various forms of thalassemia, most notably Cooley’s anemia (beta thalassemia major).

Their mission is to increase life expectancy and enhance the quality of life for those impacted by thalassemia, most of whom require regular blood transfusions and aggressive management of chronic iron overload, the predominant cause of early death. The foundation funds medical research to advance treatment and curative approaches, supports and advises patients and their families, advocates on their behalf, and educates medical professionals and the general public.

For over fifty years, the Cooley’s Anemia Foundation, a 501(c)(3) nonprofit organization, has been a strong and supportive partner for families living with thalassemia. 

Thalassemia International Federation (TIF)

The Thalassemia International Federation (TIF) promotes and implements national control programs for the prevention and treatment of thalassemia and other hemoglobin disorders across the world.

Through creation of new associations, strengthening of existing associations, delegation visits to countries of need and a multimodal educational program, they ensure equal access to quality healthcare for every patient with thalassemia and other hemoglobin disorders. 

The Thalassaemia International Federation is a non-profit, non-governmental organization founded in 1986 by a small group of patients and parents in Cyprus, Greece, the U.K., the U.S. and Italy.

New York Comprehensive Thalassemia Center of Weill Cornell Medicine 525 E. 68th St.
Payson 695
New York, NY 10065 Phone: (212) 746-3400